The TSW Podcast

Topical Steroid Withdrawal success stories, expert advice and community support. Disclaimer: Please note the advice given within the podcast does not constitute individual medical advice, and it is important you discuss your personal situation with a qualified medical practioner.

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Episodes

Saturday May 07, 2022

If there is one episode I am super proud of, it’s this one! Anya Charnaud BA(hons), FDsc,PGcert,PGdip, MA, MBACP acred is an integrative, trauma specialist psychotherapist and clinical supervisor. She has experience working in complex mental health, addictions and has worked with victims of modern slavery, human trafficking and sexual violence. Anya has been my psychotherapist for just over a year now, she was aware of TSW and provides insightful and practical guidance.   In this episode we discuss TSW trauma and PTSD, what is happening in the body and mind during and after trauma. We talk about coping strategies, and practical tools you can implement. We cover some really challenging subjects, including suicidal ideation and the symptoms of PTSD and triggers - so you may want to stagger your listening. But I do know the guidance, and EMDR exercise we go through were invaluable to me and I hope they will be to you.   Please could you share this episode with all of your TSW social media followers -  we never know who might be struggling at any point and this episode might just give people the support they need at this time.    If you are struggling now please do use 999 or 111in the UK or the emergency services in your country.    Anya Charnaud BA(hons), FDsc,PGcert,PGdip, MBACP acred Integrative and trauma specialist psychotherapist and clinical supervisor. If you would like to work with Anya you can contact her at www.ANCtherapy.com Please note Anya is not a crisis service if you are in crisis or need urgent medical attention please call 999, your GP or the NHS 111 service.    Resources and references discussed during the podcast: Books: Gabor Mate ‘When the body says no’. Trigger warning: Bessel van der Kolk ‘ The body keeps the score’ Trigger warning: Viktor Frankl ‘Man’s search for meaning’   Theories and techniques Polyvagal theory - vagus nerve’s role in emotional regulation, social connection and fear response. EMDR - Eye Movement Desensitisation and Reprocessing TRE: trauma release therapy - TRE® : Tension and Trauma Releasing Exercises, an Introduction with Jessica Schaffer - YouTube Improving Access to Psychological Therapies (IAPT) APT service www.nhs.uk Metanoia institute https://www.metanoia.ac.uk/therapy/metanoia-counselling-and-psychotherapy-service/  https://dilemmaconsultancy.org/ linked to the new school of counselling and psychotherapy.    Products Shakti /Acupressure mat: The Shakti Acupressure Mat - Total mind and body relaxation – Shakti Mat UK Cheaper alternatives can be found on amazon CosiCare ice roller. Discount code ‘RELIEF’  

Monday Apr 25, 2022

It’s up!! This one is a corker! Louise @louigi.skin and Jing @tsw_trooper share their insights and experience from treating clients at the Skin Solace Clinic in the Uk @skinsolaceclinic.uk They give tips on handling the summer months, protocols to expedite healing, products they’ve personally found useful and non irritant and how treatment works at the clinic.  Product recommendations including @cosi_care @childsfarm @cjay.serum, Ecover Zero @ecover_uk and ‘snow pillow’ are below with discount codes where they exist. I hope you enjoy this one, I personally love these girls, and please do share with other members of the community! Cosi care: 10% discount with using ‘Relief’Snow Pillow : https://rem-fit.co.uk/rem-fit-snow-pillowChild’s farm: 25% discount with: louigiskin25Skin Solace Clinic : https://www.skinsolaceclinic.co.uk

Tuesday Apr 12, 2022

In this episode I have the pleasure of speaking to Daisy Malin (DaisyMalin_Skin on instagram) about her recovery to date, how life has paused in some areas, but how she has personally evolved in many brilliant and unexpected ways. We speak about having courage to go out and face the world, natural healing, TSW social media pros and cons and relationships. Daisy is the co-host of the 'Itch n Bitch' podcast with Katie Mackie, which discusses living with a range of skin disorders, including eczema and TSW. Daisy refers to the TSW Atlas video during the episode which can be accessed here; An Overview of TSW

Wednesday Mar 16, 2022

Kelly Palace is a force of nature! Co-Founder of ITSAN in 2012 with Marvin Rapaport MD, Kelly, together with Dr Rapaport blazed the way for recognition and awareness of TSW. Kelly acted as the President for 6 years before handing leadership across to a member of the executive board.  In this episode I talk to Kelly about long haul healing, mindset and visualisations, the impact of stress, relationships and intimacy, the joy of waking up and knowing it’s over as well as establishing ITSAN and acting as a beacon for us all. Thank you to @ITSAN for making this episode possible and congratulation on the 10 year anniversary. You can find Kelly over on @championsmojo, her award winning podcast and links to resources, her book and the products we discuss are all linked in the show notes. Sending you all healing love • Clare • The TSW Podcast • Kelly’s podcast: http://www.championsmojo.com/ Top episodes from Champions Mojo for TSW: https://podcasts.apple.com/gb/podcast/dr-martin-rossman-get-rid-of-stress-anxiety-episode-80-9-8-20/id1457917756?i=1000490541510 https://podcasts.apple.com/gb/podcast/dealing-with-pain-and-suffering-episode-14-6-5-19/id1457917756?i=1000440573235 Products we discuss: Eucerin Eczema Relief and Remedy Anti Fungal Soap Kelly’s book available on kindle: ‘Take your mark, Lead!’ https://www.amazon.com/gp/aw/d/1737106906/ref=dbs_a_w_dp_1737106906# https://www.itsan.org

Sunday Feb 27, 2022

I talk to Cara about her recovery in a time where information and resources were limited, her personal commitment to natural healing, writing, advocacy and coping with post recovery trauma. Cara is a real inspiration and has been a leading contributor to raising awareness and providing support to sufferers throughout her own journey. We hope this episode fills you with confidence and positivity about your body’s own ability to heal. Cara’s blogspot is full of wonderful resources and information on tsw and can be accessed through - http://tswcara.blogspot.com Disclaimer: This podcast does not constitute medical advice. Always seek the guidance of your GP or medical practitioner.

Tuesday Feb 01, 2022

Marvin Rapaport MD is widely accepted as a leading physician in Topical Steroid Withdrawal. In 1978 he established the contact and photo dermatitis clinic at UCLA and identified TSA and TSW as a consequence of topical steroid use. He has dedicated his life’s work to raising awareness of the condition and preventing needless suffering. He has written and contributed to numerous white papers on the subject, treating thousands of patients in his Beverly Hills, CA, clinic and online and has acted as the driving force behind the Skin on Fire documentary, produced by PCH Films. It was an absolute honour to speak to Dr Rapaport about all things TSW and his continuing work to ensure the condition is widely accepted.   Disclaimer: This show does not constitute personal medical advice and you should always seek the advice and guidance of your own general practioner or doctor on your health.   Dr Rapaport Clinic and Virtual Consultationshttps://red-skin-syndrome.com/red-skin-syndrome-information/ Skin on Fire documentaryhttps://youtu.be/GuaBbsL1qKA White papers on TSWhttps://red-skin-syndrome.com/white-paper-on-steroid-addiction/

Sunday Jan 23, 2022

Essential Listening! If you are going to miss one episode of the TSW podcast, make sure it isnt this one! Jennifer Fugo, Clinical Nutritionist, Chronic Skin Rash and Gut Expert and host of the Healthy Skin Show podacst talks to me about all things TSW recovery. Jennifer shares her clinical experience of working with clients with TSW and skin rashes, and what she has learnt from conversations with experts on her podcast The Healthy Skin Show. We talk through the many options for managing and supporting your body through TSW as well as identifying and managing and your original skin rash issue. We cover Jennifer’s top tips to start building better skin resiliency now, microbiome, supplementation, nutrition, medical industry awareness, adaptogen controversy, root course analysis and and help bust some TSW myths. Jennifer and her practice work both with individual clients and provide a online group course to help your develop a healing plan, and you can find more details on her website. Disclaimer!: It’s important to seek expert individual guidance, get tested and get a personalised plan before supplementing. This episode does not constitute individual medical advice! We really hope this episode helps you in your journey to recovery.   http://www.jenniferfugo.com/ http://www.skinterrupt.com  Podcast: TSW: Is it just a waiting game? With Dr Julie Greenberg https://podcasts.apple.com/gb/podcast/topical-steroid-withdrawal-tsw-is-it-just-a-waiting/id1449210022?i=1000545149182 Podcast: How Steroid Creams Impact Your Eyes with Dr Brian Boxer https://podcasts.apple.com/gb/podcast/how-steroid-creams-impact-your-eyes-w-dr-brian-boxer-wachler/id1449210022?i=1000534079979 Podcast: Getting Emotional and Mental Support for TSW Jing Riu Yeo https://podcasts.apple.com/gb/podcast/getting-emotional-mental-support-for-tsw-w-jing-rui-yeo/id1449210022?i=1000526708275   Podcast: Topical Steroid Withdrawal  - A Personal Story with Louise King https://podcasts.apple.com/gb/podcast/topical-steroid-withdrawal-a-personal-story-w-louise-king/id1449210022?i=1000459382495

Saturday Jan 15, 2022

Luke Jacobsma is such a joy to talk to - his energy, advocacy and amazing array of experiments to support his healing makes for an amazing story. In this episode of The TSW Podcast Luke shares his journey's highs and low, his advice for anyone new starting TSW as well as his passion for coaching and music. Luke also features in the upcoming TSW documentary -Skin on Fire by PCRfilms. The documentary will be released on youtube on the 25 January. www.fireonfiredoc.com Prescribed music video: www.youtube.com/watch?v=5gk3WykOl6k Coaching: @reprogrameverything  @thetswpodcast  

Saturday Jan 08, 2022

Louise King has been a leading voice in the TSW community; documenting her journey's highs and lows on Instagram, she's contributed to the creation of Scratch That and Decoding Topical Steroid Withdrawal and has now opened a clinic supporting and treating TSW sufferers in the UK with business partner Jing. In this episode Louise talks openly about her journey to recovery, what she tried that worked and didnt and what advice she would give to anyone entering TSW. Resources: itsan.org skinsolaceclinic.co.uk Facebook immunosuppressant support group: 'Using Oral Immunosuppressants in TSW Support Group'   Instagram: @TheTSWPodcast

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